CEREBRAL PALSY THERAPIES ON WHEELS
The problem we are solving
Cerebral Palsy (CP) is the leading cause of physical disability in children worldwide. Children with CP often have difficulty with walking, speaking, swallowing, writing, and going to the bathroom. Some children with CP also experience epilepsy, which is accompanied by seizures. In Ghana, about 22,000 children are estimated to live with CP.
The death rate of children with cerebral palsy in Ghana is 15 times that of the average child in a developing country. Research from our own work suggests that more than 85% of children with CP in Ghana do not attend school because they do not have or meet the basic functional capabilities the government requires for enrolment in school. These problems are compounded by social stigma, which forces caregivers to hide children with cerebral palsy or commit infanticide
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High healthcare cost and fractured services are among the top reasons why children with CP have limited access to existing rehabilitation therapy. The monthly minimum wage in Ghana amounts to $42 a month. This income is incomparable to the $187 cost of the three common therapies the children need (physical, occupational therapy, and speech) per month. Given the long-term nature of the children’s condition, they require multiple sessions of therapy per year. These costs are not covered by Ghana’s health insurance, leaving the financial burden on families, particularly women. In addition, the multiple therapies families need are not in one place. Each therapy is located at a different town or city. Health teams do not also work together on the same child to provide the best of care. This fractured system increases childcare burden, transportation cost to receive care, healthcare cost, and high dropout rate from health care. The system barriers perpetuates poverty. It is not surprising that about 76% caregivers stop receiving therapy within the first six months after diagnosis, according to our needs assessment.
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Providing rehabilitation therapy would allow children with CP to function independently, survive, go to school, and be included in society. Our non-profit, the Center for Learning and Childhood Development-Ghana set up a community-based, one one-stop shop, free-of-charge therapy, and training clinic for families of children with cerebral palsy and other developmental disabilities. This once a week training clinic provides physical (physio) therapy, occupational therapy, and speech therapy within the same clinic visit. Caregivers also receive training on therapy techniques they can perform at home, as well as on childcare and parenting
ESSENTIALS SERVICES
Most children with CP in Ghana do not have access to rehabilitation therapy. Rehabilitation therapies are specialized services that help individuals regain any physical, mental, social or learning capabilities they have lost (e.g. physical (physio) therapy, occupational therapy, speech therapy) due to injury or disease.
Limited access to rehabilitation therapy has a real negative effect on the children’s physical and social well-being. These three essential therapies: speech, occupation, and physiotherapy are provided for children with cerebral palsy at a designated location free of charge
SPEECH THERAPY
OCCUPATION THERAPY
PHYSIOTHERAPY
ESSENTIALS SUPPORT
The impact we have made so far
Over 300 therapy sessions to children, spanning 60 families
We opened a second location to provide therapy sessions, with community requests for a third location
96% of the children receive physical therapy; 46% receive occupational therapy and 18% receive speech therapy to help them talk, walk, speak, eat, and socialize
All the services are provided to families free of charge
Several of the children have improved, particularly physical development, including one child who had not walked for eight years
Of note, close to 80% of families return each week to receive care, indicating satisfaction with the program.